A case report: MURIEL
C.Garcia Terol (1), Anna and Rafel (2), B. Carreras Marcos (3)
(1) MIdwife, Head of Maternity Services Parc Sanitari Sant Joan de Deu, Hospital, Catalonia, Spain (2) Muriels’s parents, (3) Psychologist EAPS; Parc Sanitari Sant Joan de Deu Hospital, Catalonia, Spain
Incorporate the patient experience in Quality improvement is highly recommended across the world health systems, in perinatal loss cases going back to the hospital to share their views with the health professionals sometimes is too hard for the family. Also the Health system tends to separate the family follow-up from the Health professionals who care for them in the first place, psychologist to help them in the grieving process versus midwives and gynecologists which give the bad news. Therefore it is very complicated to incorporate the “receiver” views on the “sender” way of doing.
Anna & Rafel lost Muriel at a 33 weeks’ pregnancy. They came to the A&E Departament because of a very bad headache, and the diagnosis of pre-ecampsia, placental abruption and stillbirth were devastating. The Parc Sanitari Sant Joan de Deu (PSSJD) Maternity Unit designed a Professional Clinical Guide for Perinatal Loss on May 2017, on good practices are recommended, including the way professionals should give the bad news, but also the information needed to discuss a birth plan with the parents, the creation of memories following birth, as well as the psychological support available during or after the hospital stay. This report aims to describe the experience of Anna & Rafel, Muriel’s parents, about the care they received from PSSJD health professionals.
Unfortunately the care given to families who go through a perinatal loss is not regulated nor standardized across hospitals in Spain. Health professionals should accomplished with bioethics principles, being one of them“Primum non nocere”, first do no harm. Families receive so different type of care depending on which hospital they randomly arrive and are care for. The little or next to nothing attention they get sometimes, nor helps them in their loss, but can even harm their grieving process.
Both Anna and Rafel have given full consent to the corresponding author to share their views about Muriel’s loss.