Development of a website for first trimester miscarriage
AM. Verling (1,3), R. Rice (1), C. Byrne (3), I. San Lazara Campillo (1,2), S. Meaney (1,2), K. O’Donoghue (1,2,3)
(1) Pregnancy Loss Research Group, Department of Obstetrics and Gynaecology, University College Cork, Ireland, (2) National Perinatal Epidemiology Centre (NPEC), University College Cork, Ireland, (3) The Irish Centre for Maternal and Child Health Research (INFANT), University College Cork, Ireland
It is estimated that one in four pregnancies result in a first trimester miscarriage. For many women, this loss is often compounded by the silence and stigma associated with pregnancy loss and the lack of reliable and accessible information about miscarriage. Previous research identified the need for an information resource that is accessible and sensitive to a general population audience needing information on miscarriage. The aim of this work was to design a website specifically focused on first trimester miscarriage in an effort to respond to this need.
During the development phase, the information was written by a CMS and Parent Advocate and the website was constructed in collaboration with the design team. The layout and visual aspects were key components of its development, in addition to sourcing a host site and creating a domain that would be accessible to parents and staff. Feedback was sought from a variety of clinical and academic staff and a group of bereaved parents. Recommendations were compiled and adjustments made where appropriate. Following feedback, it is envisioned that the website will be publically launched in 2019. The website will provide information on; Pregnancy, Pregnancy Concerns, Miscarriage Symptoms, Types, Management and Services, Feelings and Emotions, and Pregnancy after Miscarriage. While the site is specific to the services operating in CUMH, the information is relevant to maternity services nationally and internationally.
Medically accurate, accessible information that is written in a sensitive and visually appealing way is the ethos for this website. It is hoped that the website will become a valuable resource for parents who develop miscarriage concerns or experience first trimester miscarriage, guiding them about what to do and how to access appropriate care services. It can also be referred to by clinical staff who care for bereaved parents through the difficult journey of miscarriage.
Ethics approval not required.