Preliminary programmme

OPENING PRESENTATIONSKEYNOTESPLENARY SESSIONSBREAKOUTS & WORKSHOPSSCHEDULE

The following is a preliminary programme and may be subject to change.

OPENING PRESENTATIONS
Perinatal bereavement care in Spain: current situation and future challenges
Jillian Cassidy (President, Umamanita, Spain)
Socio-economic impact of perinatal death on society
Prof. Alexander Heazell (Professor of Obstetrics, University of Manchester; Director, Tommy’s Stillbirth Research Centre, UK)
Listening to parents: collaboration and the role of advocacy
Claire Storey (Researcher and parents advocate, UK)
Perinatal death from the healthcare professionals’ perspective: care of others/care of selves
Dr. Jane Warland (Midwife, School of Nursing and Midwifery at the University of South Australia)

The following is a preliminary programme and may be subject to change.

KEYNOTE TALKS
Providing respectful perinatal bereavement care: Reflections from the U.S.A., Spain, and Uganda
Sue Steen (Perinatal Nurse Navigator, Maple Grove Hospital; Adjunct Nursing Professor, Bethel University, USA)
Investigation of perinatal death from a Pathologist’s perspective: clinical considerations and interaction with parents
Dr. Marta Cohen (Consultant Paediatric and Perinatal Pathologist, Sheffield Children’s Hospital; Professor of Paediatric and Perinatal Pathology, University of Sheffield, UK)
Attitudes and values surrounding stillbirth and neonatal mortality in Ethiopia
Dr. Mitike Molla Sisay (Professor, College of Health Sciences, Addis Ababa University, Ethiopia)
Detection, management, challenges and innovations in clinical care of Fetal Growth Restriction (FGA/SGA)
Dr. Francesc Figueras (Head of the Department of Fetal-Maternal Medicine, Hospital Clinic Barcelona; Associate Professor, University of Barcelona, Spain)
Perinatal grief and stigma
Dr. Samantha Murphy (Medical Sociologist, Head of the Health and Social Care curriculum, The Open University, UK)
Discovering novel predictors for fetal growth restriction
Prof. Gordon Smith (Professor and Head of the Department of Obstetrics and Gynaecology, University of Cambridge, UK)
Perinatal Palliative Care Overview: U.S. Care from Parent and Care Provider Perspectives
Dr. Denise Côté-Arsenault (Obstetric nurse, Researcher, Professor of Nursing, University of North Carolina Greensboro, USA)

The following is a preliminary programme and may be subject to change.

PLENARY SESSION 1. Saving babies lives: innovations in perinatal mortality reduction
Perinatal mortality: a global and regional scorecard
Dr. Hannah Blencowe (Clinician and Perinatal Epidemiologist, Assistant Professor, London School of Hygiene & Tropical Medicine, UK)
Women and parent focused prevention strategies in low mortality countries
Dr. Jane Warland (Midwife, School of Nursing and Midwifery at the University of South Australia)
Country case study: perinatal mortality reduction in South Africa
Dr. Salome Maswime (Obstetrician, Researcher Scholar at MGH/Harvard, EE.UU and Lecturer at WITS, South Africa)
Country case study: stillbirth reduction in the Netherlands
Prof. Jan Jaap Erwich (Head of Obstetrics, University Medical Center Groningen, the Netherlands)
Plenary session 2. Systemic approaches to improving perinatal bereavement care
Developing and implementing of Ireland’s National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death
Dr. Keelin O’Donoghue (Consultant Obstetrician/Gynaecologist, Cork University Maternity Hospital; Senior Lecturer, University College Cork, Ireland)
Stillbirth and perinatal care: are professionals trained to address parents' needs?
Dr. Claudia Ravaldi (Psychiatrist, Ciaolapo, Italy)
Development and implementation of the iSAIL (Integrated Support After Infant Loss) Programme at the Royal Prince Alfred Hospital
Dr. Adrienne Gordon (Senior Staff Specialist Neonatologist, Royal Prince Alfred Centre for Newborn Care; NHMRC Early Career Fellow, University of Sydney, Australia)
Implementing care guidelines for parents after perinatal loss in the Mexican National Institute of Perinatology
Dr. Cecilia Mota Gonzalez (Psychologist, Instituto Nacional de Perinatología, Mexico)

The following is a preliminary programme and may be subject to change.

BREAKOUT / PARALLEL SESSION 1.
TitleDuration
B1.1. Parents’ experiences of care: listening to parents and understanding their needs2 hours
Prof. Ingela Rådestad (Midwife, Sophiahemmet University, Sweden)
Prof. Alfredo Vanacci (Pharmacologist & Toxicologist, Ciaolapo, Department of Neurosciences Florence University, Italy)
Dr. Sudharshini Subramaniam (Physician, Assistant Professor at Institute of Community Medicine, Madras Medical College, Voluntary Physician at Rural Women's Social Education Centre (RUWSEC), India)
Paul Cassidy (Researcher at Umamanita, Doctoral student at Universidad Complutense de Madrid, Spain)
+3 selected from abstracts
B1.2. Perinatal mortality prevention strategies2 hours
Dr. Robert Silver (Obstetrician, University of Utah Health Sciences Center, USA)
Claire Foord (Advocate, Founder & CEO of Still Aware, Australia)
Elizabeth Ayebare (Midwife, Lecturer, Department of Nursing, Makerere University, Uganda)
Dr. Matthew Jolly (Public Health Specialist, National Clinical Director for the Maternity Review and Women’s Health, NHS England, UK)
+3 selected from abstracts
B1.3. Grief experiences (psychological and socio-anthropological perspectives on grief)2 hours
Dr. Samantha Murphy (Sociologist, Open University, UK)
Dr. Rosnah Sutan (Head of Family Health Unit in Community Health Department and Family Health Research Group, National University of Malaysia, Malaysia)
Dr. Jane Warland (Midwife, School of Nursing and Midwifery at the University of South Australia)
Dr. Manuel Fernández Alcántara (Psychologist, University of Alicante, Spain)
+2 selected from abstracts
B1.4a. Respectful disposition: practices and bioethics in the disposition of the body and handling of remains/tissue1 hour
Dr. Sheelagh McGuinness (Centre for Health, Law, and Society, University of Bristol Law School, UK)
Dr. Sonia Pastor Montero (Pediatric Nurse, Juan Ramón Jiménez Hospital Huelva, Spain)
Rocío Cuéllar (Lawyer and advocate, Asociación Madres Libélula, Spain)
B1.4b. The legal framework of perinatal death1 hour
Francisca Fernández Guillén (Lawyer, Spain)
Prof. Vicki Flenady (Epidemiologist, Australian National Health and Medical Research Council (NHMRC), Centre of Research Excellence Australia)
+2 selected from abstracts
BREAKOUT / parallel SESSION 2
TitleDuration
B2.1. Risk factors and causes of perinatal death1.5 hours
Prof. Alexander Heazell (Obstetrician, Tommy’s Stillbirth Research Centre, University of Manchester, UK)
Dr. Salome Maswime (Obstetrician, Researcher Scholar at MGH/Harvard, WITS University, South Africa)
Dr. Eva Bermejo Sánchez (Epidemiologist, Tenured Scientist, Responsible for the Epidemiology Section at Research Center on Congenital Anomalies (CIAC), Instituto de Salud Carlos III, Spain)
+2 selected from asbtracts
B2.2. Community based care: follow-up care, support associations and support groups1.5 hours
Caroline Wanjiru Khusa (Advocate, Founder and CEO, Still a Mum, Kenya)
Carolina Rodríguez Palenzuela (Advocate, Support Group Coordinator, Asociación Cometa, Spain)
Trine Kalstad (Anthropologist, Director of the Norwegian SIDS and Stillbirth Society, Norway)
+2 selected from abstracts
B2.3. Woman-centred birth planning and management (communication and decision-making, mode of birth, pain management, sedative use, etc.)1.5 hours
Dr. Katherine Gold (Family Physician, University of Michigan, USA)
Paloma Martínez-Serrano (Midwife, Midwifery Teaching School, Madrid Regional Health Service, Spain)
Dr. Karina Romo (Medical Anthropologist, Innovia Foundation, Mexico)
+2 selected from abstracts
B2.4. WORKSHOP: Communicating with parents: A multidisciplinary approach1.5 hours
Dr. Keelin O’Donoghue (Obstetrician, University College Cork, Cork University Maternity Hospital, Ireland)
Dr. Adrienne Gordon (Neonatologist, University of Sydney, Royal Prince Alfred Hospital, Australia)
Orla O’Connell (Bereavement and Loss Midwife, Cork University Maternity Hospital, Ireland)
BREAKOUT / PARALLEL SESSION 3
TitleDuration
B3.1. Improving care quality through the development of care standards, training and support structures for HPs1.5 hours
Dr. Sonia Pastor Montero (Pediatric Nurse, Juan Ramón Jiménez Hospital Huelva, Spain)
Dr. Fatima Camba (Neonatologist, Vall d’Hebron University Hospital, Spain)
Dr. Margaret Murphy (Midwife, School of Nursing, Cork University Maternity Hospital, Ireland)
+2 selected from abstracts
B3.2. Perinatal and neonatal palliative care1.5 hours
Prof. Alison Kent (Neonatologist, University of Rochester, Golisano Children's Hospital, USA)
Dr. Janicke Marita Syltern (Neonatologist, St Olav’s Hospital and Trondheim University Hospital; PhD student, Norwegian University of Science and Technology, Norway)
+1 invited to confirm and 2 selected from abstracts
B3.3. Classification, investigation and audit of perinatal death - technical perspective1.5 hours
Prof. Vicki Flenady (Epidemiologist, Australian National Health and Medical Research Council (NHMRC) Centre of Research Excellence, Australia)
Prof. Jan Jaap Erwich (Obstetrician, University Medical Center Groningen, the Netherlands)
Dr. Jane Dahlstrom (Perinatal Pathologist, College of Health and Medicine, Australian National University, ACT Pathology, Australia)
+2 selected from abstracts
B3.4. WORKSHOP: Postpartum care rituals: supporting parents to see and spend time with their baby and to keep objects and photographs following perinatal death (Limited to 50 places)1.5 hours
Sue Steen (Perinatal Nurse Navigator, Maple Grove Hospital, Bethel University, USA)
BREAKOUT / PARALLEL SESSION 4
TitleDuration
B4.1. Classification, investigation and audit of perinatal death: interaction with parents1 hour
Asoc. Prof. Frances Boyle (Social Scientist and Health Services Researcher, University of Queensland Institute for Social Science Research, Australian Centre of Research Excellence in Stillbirth (Stillbirth CRE), Australia)
Dr. Christy Burden (Consultant Senior Lecturer in Obstetrics and Gynaecology at University of Bristol; Southmead Hospital, UK)
+2 selected from abstracts
B4.2. Care provision following detection of life limiting fetal anomalies1 hour
Dr. Cecilia Mota González (Psychologist, Instituto Nacional de Perinatología, Mexico)
Dr. Laureano Folgar (Gynecologist, Hospital Sureste Madrid, Spain)
+2 selected from abstracts
B4.3. Pregnancy after loss1 hour
Dr. Margaret Murphy (Midwife, School of Nursing, Cork University Maternity Hospital, Ireland)
Dr. Elizabeth McCarthy (Senior Lecturer, Department of Obstetrics and Gynaecology, University of Melbourne; Perinatal Centre, Mercy Hospital for Women, Australia)
+2 selected from abstracts
B4.4. Puerperal care (lactation suppression, milk donation)1 hour
Dr. Nadia Raquel García Lara (Pediatrician, Hospital Universitario 12 de Octubre, National Milk Bank, Spain)
+2 invited to confirm

The following is a preliminary outline schedule and may be subject to change.

Saturday 5th October 2019

Registration: 08:00-08:30
Conference: 08:30-19:30

Sunday 6th October 2019

Conference: 08:30-17:00
Commemorative event: 18:00-20:00